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Showing posts with the label Spina Bifida

John Rosen Memorial 5k - Follow Up

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Thank you all for joining us last month for the John Rosen Memorial 5K and 1 Mile Fun Walk. We are so pleased that you could come out and support our family. For those of you who could not make it, we appreciate your support too. We were able to donate $2000 to the Spina Bifida Association in John's name. John would have been proud of all of you. We had some sizing issues with t-shirts. Hopefully everyone got one that fit but I know that some of you might not have. I apologize for that. If you take a look at the t-shirt, you can see the silhouette of John running. Our designer did such a nice job of recreating that action shot from a picture my Dad took of John running on the track. Notice how both of John's feet and one crutch are in the air. He was really getting it.  I hope that this event continues to inspire you and I ask that you sign up for another local race. Keep moving. Exercise is the key to good physical and mental health and can help kids and adults s...

Thanks! - Donating to the Spina Bifida Assocation

Thanks so much to everyone who helped us make this event possible. To all the private donors and small businesses who helped finance this event, to the participants, and to the volunteers, we thank you very much. John would have been so proud to see all of you coming together. I will be announcing the exact amount of money we raised to donate to the Spina Bifida Association over the couple of days. In the meantime, our family still gets some requests to donate to the event. At this point, if you are interested in making a donation, please donate to the Spina Bifida Association directly. You can go to the following web address and make an online contribution. https://www.sbevents.org/index.cfm?fuseaction=donate.event&eventID=522 Please select "In Memory of" and put in John Rosen. For the notification section, please use the following name and address. This will ensure that I am notified when someone makes a contribution. You would be donating directly to the SBA in J...

Latest Race News

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Thank you for registering for the John Rosen Memorial 5K and 1 Mile Fun Walk. I think of my brother John daily. John and I were very close and I was devastated when he passed away. This event is a good way for me to spend some positive energy to help us remember and honor the life of John. I invite you to check out the "About John" section on our website to learn more about John and his life. My entire family thanks you for your support.  The following are some details about the race I thought might be nice to share with you now. I cover the following topics below. Race Location Race Schedule Parking Walkers Runners Awards T-Shirts Weather Race Location : Vienna Elementary School. 128 Center St S, Vienna, VA 22180. Race Schedule : Friday, October 21st  4 PM to 7 PM Packet Pickup/Registration -Emmanuel Lutheran Church 2589 Chain Bridge Rd., Vienna, VA  22181 Saturday, October 22nd 7:30 AM Race Day Registration/Packet P...

Thank You Sponsors!

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We are one month away from the John Rosen Memorial 5k and 1 Mile Fun Walk. Register today at http://www.johnrosen5k.com . First and foremost I must express my gratitude to all the people who have come together to make this event possible. Without the generosity of private donors and local small businesses, we could not have produced this event. We envisioned this event as a good way to come together to remember and celebrate the life of John Rosen. I have written much about John and how his death has impacted my life. I truly think of John every day and I want to remember his spirit and share it with as many people as possible. John overcame obstacles from day 1. He showed up for life and never complained about anything. Despite being born with Spina Bifida, he led a full and active life. Thank you to all our sponsors for making this event possible so we could share John's story with everyone and maybe inspire you to go beyond your limits. Here is a list of our corporat...

Thank You Sponsors!

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We are one month away from the John Rosen Memorial 5k and 1 Mile Fun Walk. First and foremost I must express my gratitude to all the people who have come together to make this event possible. Without the generosity of private donors and local small businesses, we could not have produced this event. We envisioned this event as a good way to come together to remember and celebrate the life of John Rosen. I have written much about John and how his death has impacted my life. I truly think of John every day and I want to remember his spirit and share it with as many people as possible. John overcame obstacles from day 1. He showed up for life and never complained about anything. Despite being born with Spina Bifida, he lead a full and active life. Thank you to all our sponsors for making this event possible so we could share John's story with everyone and maybe inspire you to go beyond your limits. Here is a list of our corporate sponsors. Please visit their web pages, go to ...

Save the Date! Saturday, October 22nd.

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Great News! I just got word that the special events application for the John Rosen Memorial 5K has been approved by the town of Vienna. So please hold the date for Saturday, October 22nd, 2016 for the 5K Run and 1 Mile Walk as way to remember John and his life. I will post more details at they emerge.  ‪#‎ johnrosen5k‬

Life in Pictures

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I wanted to share some of the pictures of John that we had posted at his funeral. My brother Erik spent a good deal of time digitizing all the many photos that were taken mostly my by dad who was quite a shutter bug. As you can see, John was a happy and active young boy who grew up to be a caring and generous adult.